Monday, September 29, 2008

" in everything give thanks"

I decided that we would begin writing down everything that encourages us each day. It is always is good to hear the positive so that is the way we will get through this adventure. Right now it is hard - very hard.

Today the nurse came to make sure I could give Steve the necessary needles. Testing his sugar, insulin - 2 kinds, and the blood thinner that hurts him when I give it because it burns when it goes in his belly. She sent the physical therapy nurse. When she came to assess the situation she said that the only thing she would do with Steve was "range of motion" therapy. This meant that she would move his legs up and down and move his arms the same way. That was all. She wanted to know what goal the family had for Mr. Steve. I said that we wanted him to walk again. She said that that goal was not attainable with the therapy that she did and that we would have to contact our physician to have him request this for Steve. As God would have it - the AETNA case manager called today and wanted to know how we were doing and offer a free service AETNA has - to work on behalf of the patient and get appropriate care. Boy did I fill her ears with information. She will call me back later in the week to see what they can do to get Steve out patient physical therapy. That would be great. Please pray that God works something out because I am not ready to give up on his ability to walk again. He really wants to be able to walk by himself to the bathroom.

We are also thankful for God providing meals for us. This will be a GREAT help because I go back to work tomorrow. And BOY is Mr. Steve going to have fun with Uncle Denny. He will be pooped when I get home I'm sure. I brought up 2 pound weights for them to begin a home therapy program.

Today Steve is showing signs of understanding a little more about his left hand. He was looking at his hand and got some of the fingers to move. This is good. He also moved his left leg and the physical therapy nurse thought that was good. So these are signs of encouragement for me anyway.

Steve is eating a little better now - that is good. His daytime sugars are also good. It's just the stupid night tube feedings that send his sugars into orbit. That is another discussion.

We got MORE sleep last night and this is REALLY good. He slept from 10:30 to 1:30 and needed to pee and was up until 2:15 then back to sleep until 6:18 and I asked him to give me another hour and he slept until 8:00. That was good - I could take that every night.

So here we are again. Thanking you for holding us up in prayer and God for getting us through another day.

Janice

4 comments:

Sojourner said...

Yay for hand and leg movement!
So good to see Steve with Daisy!
Love the picture with Janice too!
Still at work tonight until 4am and praying for longer stretches of restful sleep for everyone.

Heather said...

I think that is a lot of praises for the day! Thank you for sharing those with us so we know better how to pray for all of you as you transition to all of the care at home.

Jonathan said...

Praise the Lord for all those thngs today! Keep fighting Mr. Steve and know that we are praying and supporting you. We love you all.

Love,
Laura

Anonymous said...

Somehow I missed this entry. Don't know how that happened. This is all such good news--movement, improvement, progress and continued faith and hope. I wonder--how broad is your prayer network? How many states are represented? I'm in Ohio, you're in NJ, where all is everyone else who is praying for and remembering Mr. Deichert and your whole family?

Hugs,
Julie