Thursday, August 28, 2008

"now I lay Steve down to sleep"

Each day is an adventure for Mr. Steve. He continues to gain strength. Today he told me that he was brushing his teeth on his own now. This is good. They are really trying to make him as independent as he can. He is also feeding himself - yummy pureed mystery meat and veggies!
And when he is thirsty the nurses give him a drink of thickened peach nector. YUM!

There are still some areas of concern however. He still has discomfort with his left side. That is the side that does not move upon command. Therefore when it is moved - he has pain. What is happening is that the muscles in his shoulder and hip are weak and since the brain is the central nervous system - it sends a signal that there is pain. And that is what Steve experiences. The doctor does not think there is any dislocation but just muscle weakness and nerves that signal pain. So lets pray specifically that God will strengthen these muscles. When this happens two things will happen - he will be free of pain AND he will have movement! It makes sense to me.

Mr. Steve wants to have liposuction done on his body. He wants to take the fat on his belly and place it in his "bottom". He has no padding and continues to be uncomfortable. Once he is stronger he will be able to re-position himself in the wheelchair, but until then it is tough for him to sit for any length of time.

The last thing that concerns me at this time is his sleeping. Sometimes people that go through brain disorders have their days and nights mixed up. I think this is happening to Steve. More than that - I think he is having trouble sleeping because he is having night terrors. The only way I can explain this is that going through an AVM you will experience seeing weird things. During the day the nurses or myself can say "No that isn't there or no I can't see that person." But at night he is alone in the room. The nurses and I think he has sleep apnea. They don't do a sleep study at Magee so it will not be able to be diagnosed until he gets home. I will make an appointment asap so he can have this test. Knowing Steve he does NOT like anything on his face so we need to find a machine that he would tolerate.

I think you have enough to pray about for one evening. If any of you women (or men) wake up during the night - remember to pray for Steve because chances are he is not sleeping peacefully.
When we left tonight he was extremely sad. He didn't want me to leave him there. It really broke my heart. Please pray about this because he has at least 5 more weeks of this.

Our love to all - Shalom

Janice

3 comments:

Anonymous said...

Thank you for the update. I will pray for everyone's strength.

~Julie

Anonymous said...

Janice - I will be praying for Steve to get a good nights sleep - although - its hard to sleep when riled up from watching both the Eagles and Phillies blow a lead!!!!
Seriously, I think of you often and pray for YOUR strength also. Love you - J #1

Anonymous said...

Dear, dear friends/family (we are related and I'm so happy ) I understand!!!!!!! oxoxox linda
I'm used to praying through the night so Steve will certainly be remembered.